Healthy Obsessions The Adventures of a Mild Obsessive Compulsive

Tag Archives: Health

What Celiac Blood Test Results Look Like

Crazy busy at work (which I love since I’m getting to work on character development and standardizing regional dialects). But. I’d meant to include some screencaps of my celiac test results in my last post and forgot to.

Here are my celiac panel results after three months back on gluten:

After three months on gluten.

The tTG is the one I consider most important, and I had a score of 37; anything above 8 is considered positive. I don’t know which one my doctor considers most important, but since two are clearly positive that’s not really a problem. As positive test results go, these are not particularly high.

For comparison, here’s what my test results looked like when I’d been off of gluten for a year:

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Getting Tested for Celiac Disease

A lot of friends have been asking me about the whole process of getting tested for celiac disease. Enough by now that I’m figuring I ought to do a full write-up instead of typing up a new answer each time. So, without further ado:

The Tests Themselves

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Maps of Bay Area Gluten Free Restaurants

I’ve taken to using Yelp to find local gluten free restaurants, and then Google Maps to mark them and make notes. So far I’ve got San Francisco:

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How to Feed a Celiac

 

Wooden cookware can retain gluten, even after thorough washing.

 

First, a thank you. To everyone who has fed me and dealt with my dietary limitations. In particular mom and wshaffer. You are heroes of the revolution.

Now, an apology to anyone I’ve driven crazy by minutely examining their kitchen, or not eating the food they prepared, or whose trash can I’ve sifted through to find food wrappers. It’s not personal.

Feeding a celiac guest is hard. There are a lot of things that aren’t initially obvious. I made lots of mistakes in the early days. I’m probably still making some.

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What Celiac Disease Does to Your Intestines

First, I’m going to show you a few pictures. These are healthy villi; they line the insides of your intestine:

Healthy Intestinal Villi

Distance View of Healthy Villi

Normal Villi

Remember, this is what your intestines are supposed to look like. Kinda like a fuzzy blanket. Or coral.

The villi are what absorb nutrients from food. You need them. If they’re damaged, your entire body suffers. You develop vitamin deficiencies. You may always be hungry, because your body isn’t getting the nutrients it needs. Any condition that can be caused by malnutrition… you’re at risk. If your villi aren’t working correctly.

Now, let’s take a look at the intestines of someone with Celiac Disease. Read more →

If you have celiac disease…

This is your intestine.

This is your intestine on gluten.

Any questions?

Since I'm stuck eating gluten…

I’m going to try to sample, in the three weeks I have left of the gluten challenge, as many gluteny foods as I can. If I have to feel sick, I might as well enjoy the process of getting there (I wonder if people say this about pregnancy, too….)

To that end I’m asking for suggestions of what to try.

Suggestions thus far are:

  • Pizza
  • Cookies
  • Baguettes
  • Cake
  • Brownies
  • Retch’s famous chocolate chip cookies
  • Zeppoli (I don’t even know what this is)
  • Guava pastries
  • Sourdough bread
  • Pasta
  • Sandwiches
  • Macaroni Grill food
  • Beignets
  • Mac and Cheese w/breadcrumbs on top
  • Cheesecake
  • Beer
  • Donuts (pref. hot)
  • Baked pasta
  • Churros
  • Luigi’s (local rest. I believe)

Some of these suggestions, I’ve already tried (or tried today). I have had:

  • Homemade chocolate chip cookies
  • Dutch chocolate cookies
  • Buttermilk spice cupcakes (also homemade)
  • Chocolate rum cake
  • Brownies
  • Mac and cheese (both of the Kraft and other varieties)
  • Carbonara
  • Italian bread & French bread & Sourdough
  • Crackers
  • Granola bars
  • Subway sandwiches (I know they’re awful, but I like them)
  • Bagels
  • Old Fashioned Glazed Donuts
  • Tyropita & Spanikopita
  • Braided lemon loaf (courtesy of a co-worker’s wife)
  • Pizza
  • Ravioli
  • A hamburger with a bun
  • Calamari (it was pretty meh, though)
  • Mozarella sticks
  • Fried chicken
  • Chicken pot pie

I’m going to have to keep my samples small, or else go on a massive diet after this is all over. Strangely (ha) I find that I don’t have much appetite these days. Possibly because of the constant queasy feeling…

Sometimes Grace is Too Hard to Manage

Today was a tough day. Healthwise.

I’ve been on a gluten challenge for two weeks now, at the insistence of the celiac specialist I’m seeing. And… she’s not wrong. I need an intestinal biopsy for an official diagnosis, which will make insurance a hell of a lot easier to deal with. And that requires me eating enough gluten to damage my intestines. But…

There are about a billion symptoms that go along with celiac disease (okay, that’s a bit of an exaggeration), and I’ve got half a dozen of them at the moment. Most distressing was the realization that I’m not actually absorbing the vast majority of my medications. And yeah, it’s pretty obvious. And no, I’m not going into detail on this one. Rare though discretion is on my part.

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Don't Trust Anything That Bleeds for Five Days and Doesn't Die

Was it Heinlein who said that? For some reason, I want to attribute it to him.

Any rate. If you couldn’t tell from the title of this post (and really, it’s a dead giveaway) I’m talking about menstruation. Here’s my menstrual calendar for the last year.

June 2009 – May 2010

I am apparently deeply untrustworthy.

Why I Love the Stanford Medical Clinics

Advanced Technology

Guess how I started my day today? With a spontaneous endometrial biopsy. Which is awesome. Aside from the pain part.

It actually is awesome. I’ve now seen three different gynecologists, two of whom are at Stanford (and I would have gladly seen the same doc both times, but she didn’t have any appointments available). One appointment was at PAMF, and that doc was quite nice, but also quite rushed.

I like PAMF. I get, for the most part, excellent care there. But one of the things that the Stanford docs have over PAMF is simply time. Stanford is an educational institution. Which means, sure, you may get a resident instead of a practicing physician, but it also means they have more time. And they’re more up to date on the newest tests and treatments. And they ask more questions. And they’re willing to run more tests. And they like exploring strange symptoms and conditions.

My first appt. at Stanford Gyn. took an hour, and in that time they did a thorough family history, did a pelvic exam, did a urine test, and gave me a sonogram. Right then and there. They wheeled the machine in and proceeded to show me my ovaries and point out my cysts. They also appreciated that I wanted to see those things.

Poly Cystic Ovary (not mine)

At PAMF, the doc prescribes the sonogram for me and then I have to schedule with Radiology. Which usually means the actual sonogram will happen in another two weeks. And the sonogram tech can’t show me my ovaries or point out where my cysts are, because only doctors are allowed to do that (which makes plenty of sense). But the doctors don’t have time, there, to do these tests themselves.

Today was a follow up to talk about my irregular menses, most likely caused by PCOS.  (I find the term “irregular” ironic in this case, since I bleed quite regularly –  every two weeks). The treatment I’d tried (which actually was prescribed by my endo at PAMF) hadn’t worked. It helped, a bit. Gave me a few more days between periods. But still.

The gynecologist who saw me today went over my options: birth control pills (this is always the first option, but one I don’t want to take), a hormonal IUD instead of the copper, Nuvaring, or a stronger dose of the prior treatment (progesterone pills, taken to provoke a full shed of the uterine lining). But, she said, I want to do an endometrial biopsy and we can discuss options after we get the results.

And she did it right then, right there.

This is the first time anyone has biopsied my endometrium. Considering my history of excessive/irregular bleeding, you’d think that would already have happened.

It wasn’t fun. In fact, it hurt quite a bit. Somewhat akin to the uterine sounding during IUD insertion. Except, in that case, I was already doped out on painkillers and other medications, so that probably actually hurts a lot more in reality.

But. I’m really glad my doctor did it.

(Also – I get that a lot of guys get squeamish talking about female biology, and some of my guy friends will complain about me talking so publically about it. But really, deal. Female  biology, and medicine, needs to be more openly addressed. Making it a taboo subject promotes ignorance, misunderstanding, and poor medical care.)